Saturday, September 15, 2012

A tale of an Indian woman

"angshu says , Mama dont fight with anybody for me, " angshu shares with his elder sister whatever is given to him, he doesnt have a chocolate even if his sister is not there at home"...... :angshu is very understanding";;;;;;;;;;;;;;;;; This was the topic of Purnima, since I met her. I had to go to Patna, to recieve 'Ashoka Award" and there she came from Muzaffarpur to attend a CRE programme.

She couldnt stop her tears while sharing her story neither I. Here is the Indian woman, who is facing reality every moment and we are unaware of it.

Purnima got married when she was 17 years old. At the age of 19 she gave birth to a girl child.. Her Mother in law was not at all happy as the girl child came in the family.. Everyday she used to pressurise for  a "Pota" a grandson. In between her husband was diagnosed brain cancer.

'It was a hard phase of my life, one side I was worried about my husband, running here and there for treatment and the other side Mother in laws torture was increasing day by day. Even my husband was so practical that he was not ready to go for a second issue with that health condition. " However we couldnt avoid it."

"Angshu was born. Angshu had no birth cry and he had not even opened eyes couple of weeks. Those were again a difficult phase of  my life. One side I used to take Angshu to different hospitals and the other side my husband's condition was detereorating. " Angshu was diagnosed "Down"s Syndrome".

Down's Syndrome is the most common chromosome abnormality which is associated with a delay in cognitive ability and physical growth and a particular set of facial characteristics.

"My Mother in law started accusing me that I have some problem that I have not been able to give birth of a healthy normal boy. My husband expired when Angshu was four months." I had no other way than to go back to my" Parent;s house, maike" ".

Angshu is eleven years old now. He is understanding, caring, If somebody comes to meet his Mom, he offers "Kursi", "Chair" and calls his Mom. He never fights even when the other boys of the village shouts at him, "pagal" "mad"... he tries to avoid fighting, shouting, arguement. He consoles his Mom not to cry and to let it go. Purnima;s eyes was full of tears.

"For Angshu only I had to go for the course of "Special Educator". Atleast I have a world now."

"How was the reaction of your society or surroundings when Angshu was a little boy? I asked."

Purnima, looks at me and said, every day some new struggle, I used to face." I remember I used to leave Angshu with my parents while I used to go out. One day, I came back and saw, Angshu was senseless. I took him to the hospital and later came to know, a group of boys in the village whom Angshu went to play with, gave him eight packets of Gutkha and asked him to have those. Angshu was told if he has those , he would have more strength and then only he will be able to play with them."

"Sometimes my Mother also tortures Angshu, when I am not there at home. Many times when I come back I watch Angshu sits alone in the staircase, He never complains as he doesnt want to give me pain. One day a group of village boy was running after Angshu with stones , stick in their hand. Angshu, to save himself was running towards home. My Mother saw and asked what happened and to defend themselves those boys told Angshu has stolen biscuits from the shops. Without even listening Angshu, my Mother starts beating him. Later on it was unfolded that it was fun for the villagers to run after someone who is different."

I couldnt understand where to start , and what to start first? To console Purnima or to speak with the villagers or to arrange awareness programme in every corner of the country? I wish a day will come for all the Moms like Purnima when we will understand and feel them, in a way a world who have and who dont have will understand each other may be?




Friday, August 31, 2012

Lali

I still remember her facial expressions, I took her out of her shelter home and she was surprised may be ! We were capturing her facial expressions . How can parents abandon such a lovely child? a gift of God? I am sure no parents would want her child to abandon this way, specially a Mother.

She was shouting some meaningless words, we couldnt understand. Was she looking for some known face of shelter home? I showed her camel, I noticed her handflapping continuously. I was told she is epileptic with 80% physical disabilities.

After an hour we reached Snehalaya, a shelter home near Gwalior where she stays. She is around 6 years may be. Her name is Lali.

I came back to Kolkata and did various types of work afterwards. however still remember Lali, I made different clippings of films to appeal to the world that No parents should abandon their child whatever the situations come in.

In the rural belt of India due to lack of awareness and family pressure many parents abandon their special kids. Moms of the rural area have too much family responsibilities, like to take care of the children, household work, to take care of inlaws, father in law, mother in law, sometimes help their husbands in agricultural field too. Inspite of that most of them have no say or opinion in the family. Lali may be a child of such family? Who knows?

We pamper our children, sing song for them, tell fairy tales at the bedtime however children like Lali are brought up in shelter home with other children , may be caregivers lose patience many times. they cant feel even. I wish children like Lali meet their Mom someday.

Even in the rural belt of India many times there are lack of specialists to identify the disability. I knew Lali has multiple disability with epilepsy. After few years when I started studying on autism , I found that Lali's core features are so similar with autism. She didnt have eye contact, hand flapping was there, she was mute however was identified as multiple disailbility.

I wish Autism awareness can be spread every corner of the world, all the states and villages of India and all the children like Lali gets proper therapies one day. EVERY LALI SHOULD BE ASSESSED CORRECTLY AND EVERY FAMILY SHOULD BE AWARE OF THE CHILD.